Tsihala was born with Down Syndrome on September 12th 2014. Fehy and Ashley, her parents, have had to adapt to raising a special needs little girl in their family. We as a whole family have had to adapt to this but wouldn’t have wished it any other way. Tsihala is such a joy and blessing in all our lives. Tsihala has an older sister, Harena who is four, and her parents are expecting their third child in March of 2017.
On September 22nd, 2016, less than two weeks after her 2nd birthday, Tsihala was diagnosed with Acute Myeloid Leukemia or AML. She spent a little over one month at the hospital during her first round of chemotherapy treatment in October. Her second round will begin next week. Each round is expected to last one month or more depending on Tsihala’s White Blood Cell Count. There will be at least four or six more rounds depending on a bone marrow biopsy that was performed. Tsihala is expected to be in and out of the hospital for treatment for the next six months or so including Holidays.
Tsihala’s parents have had to make several sacrifices and compromises in order to accommodate their current situation. Ashley had completely halt and stop her job as the Assistant Property Manager with the company that manages their apartment complex. Ashley’s job was paying for their rent until now, which is one of the main reasons I wanted to start this page for them. As long as she is not working their rent is not able to be paid. My brother and sister in-law have been able to manage with the help of family and friends the past month or so, however, the financial strain is getting harder on them with each passing day. Although Fehy still manages to work, there are several things that they need assistance with including gas money for transportation to and from the hospital daily, as well as other doctors appointments for the new baby across town, and getting Harena to pre-school. The family is also working on setting up childcare for Harena for when she is not in preschool. And their most obvious financial strain is their rent payment monthly.
Any little thing will help this family in need as they struggle to juggle the life of a new cancer diagnosis with their already complex special needs little girl, as well as balancing prolonged hospital stays and keeping the family together.